Privacy and Cookies Policy

1. Purpose of this Notice

This Notice tells you how the University of Leeds (University) will collect and use your personal data when you access this website and/ or register to access the Q-Bex Questionnaire (the “Questionnaire”). The University is a ‘controller’ of this personal data for the purposes of the data protection legislation.
Note that additional information will be provided where you are requested to register with the Site to access the Questionnaire.

It is important that you read this Notice together with any other privacy notice we provide on specific occasions when we are collecting or processing personal data about you so that you are fully aware of how and why we are using your data.  This Notice supplements the other notices and is not intended to override them.

2. Changes to this Notice

We keep the information provided in this Notice under review. This Notice may be updated from time to time. If we make any substantial updates, we will draw these to your attention.

We will not use your personal data in any manner that is incompatible with the purpose for which the data were collected originally, unless we have obtained your consent to that additional use.

3. Anything you are not clear about

If there is anything you are unclear about, please contact our Data Protection Officer, who will be happy to answer any queries you may have concerning this Notice or the way in which we process your personal data.

The Data Protection Officer’s contact details are provided at the end of this Notice in section 10.

4. Purpose of processing

4.1 Explicit collection of personal information

The personal data collected from professional Users will be used to inform them of any update or technical issue with the questionnaire and to alert them of opportunities to inform its future improvements.

The personal data collected from Respondents will only be accessible to the User who created the version of the questionnaire they have responded to. These data will not be accessible to the Q-BEx team or to anyone at the University of Leeds.

Data provided by Respondents is automatically anonymised, but there is a de-anonymisation key in a text document accessible by User only (to link data to individual children if necessary). Users are expected to store the data locally in accordance with their professional codes of conduct and according to the data protection regulations in their country. None of the personal information about children’s relatives is stored by the questionnaire. That information is used only for the purpose of question customisation while the questionnaire is being used by the Respondent.

4.2 Automated collection of personal information

When you access our web pages certain information your browser provides, including your IP address at the time, browser type, and potentially the address of the page you last visited, will be automatically recorded by the University. This data may be used to aid detection in the event of a security breach. The legal basis for this processing is a necessity to pursue our legitimate interests to keep our website secure. The University retains this data in a form from which you may be identifiable for as long as we maintain the Q-BEx questionnaire (unless you ask us to delete these data).

5. Third-party access

The personal data that you have provided will not routinely be sent to third parties (unless notified – see section 7).

6. Data retention

User data will be retained on a secure server in the UK indefinitely (unless Users request their deletion).

Respondent data will be stored on a secure server in the UK for a period of one year. After that it will be destroyed.

7. Cookie Policy

Where we request personal data from you on our website you will be informed at that time of the purpose for which the data will be processed and how it will be processed, its legal basis for processing as well as any transfers to third parties.

Q-BEx (“we” or “us” or “our”) may use cookies, web beacons, tracking pixels, and other tracking technologies when you visit our website www.q-bex.org, including any other media form, media channel, mobile website, or mobile application related or connected thereto (collectively, the “Site”) to help customise the Site and improve your experience.

We reserve the right to make changes to this Cookie Policy at any time and for any reason. We will alert you about any changes by updating the “Last Updated” date of this Cookie Policy. Any changes or modifications will be effective immediately upon posting the updated Cookie Policy on the Site, and you waive the right to receive specific notice of each such change or modification.

You are encouraged to periodically review this Cookie Policy to stay informed of updates. You will be deemed to have been made aware of, will be subject to, and will be deemed to have accepted the changes in any revised Cookie Policy by your continued use of the Site after the date such revised Cookie Policy is posted.

Cookies are text files placed on your device to collect standard internet log information and visitor behaviour information. This information is used to track visitor use of the website and to compile statistical reports on website activity. Learn more at www.aboutcookies.org or www.allaboutcookies.org.

You can set your browser not to accept cookies and the above websites tell you how to remove cookies from your browser. However, in a few cases some of our website features may not function as a result.

Use of cookies

A “cookie” is a string of information which assigns you a unique identifier that we store on your computer. Your browser then provides that unique identifier to use each time you submit a query to the Site. We use cookies on the Site to, among other things, keep track of services you have used, record registration information, record your user preferences, keep you logged into the Site, facilitate purchase procedures, and track the pages you visit. Cookies help us understand how the Site is being used and improve your user experience.

Types of cookies

The following types of cookies may be used when you visit the Site:

Advertising Cookies

Advertising cookies are placed on your computer by advertisers and ad servers in order to display advertisements that are most likely to be of interest to you. These cookies allow advertisers and ad servers to gather information about your visits to the Site and other websites, alternate the ads sent to a specific computer, and track how often an ad has been viewed and by whom. These cookies are linked to a computer and do not gather any personal information about you.

Analytics Cookies

Analytics cookies monitor how users reached the Site, and how they interact with and move around once on the Site. These cookies let us know what features on the Site are working the best and what features on the Site can be improved.

Our Cookies

Our cookies are “first-party cookies”, and can be either permanent or temporary. These are necessary cookies, without which the Site won’t work properly or be able to provide certain features and functionalities. Some of these may be manually disabled in your browser, but may affect the functionality of the Site.

Personalisation Cookies

Personalisation cookies are used to recognise repeat visitors to the Site. We use these cookies to record your browsing history, the pages you have visited, and your settings and preferences each time you visit the Site.

Security Cookies

Security cookies help identify and prevent security risks. We use these cookies to authenticate users and protect user data from unauthorised parties.

Site Management Cookies

Site management cookies are used to maintain your identity or session on the Site so that you are not logged off unexpectedly, and any information you enter is retained from page to page.

Third-Party Cookies

Third-party cookies may be place on your computer when you visit the Site by companies that run certain services we offer. These cookies allow the third parties to gather and track certain information about you.

Control of Cookies

Most browsers are set to accept cookies by default. However, you can remove or reject cookies in your browser’s settings. Please be aware that such action could affect the availability and functionality of the Site.

For more information on how to control cookies, check your browser or device’s settings for how you can control or reject cookies, or visit the following links:

In addition, you may opt-out of some third-party cookies through the Your Online Choices Opt-Out Tool.

Other tracking technologies

In addition to cookies, we may use web beacons, pixel tags, and other tracking technologies on the Site to help customize the Site and improve your experience. A “web beacon” or “pixel tag” is tiny object or image embedded in a web page or email.

They are used to track the number of users who have visited particular pages and viewed emails, and acquire other statistical data. They collect only a limited set of data, such as a cookie number, time and date of page or email view, and a description of the page or email on which they reside. Web beacons and pixel tags cannot be declined. However, you can limit their use by controlling the cookies that interact with them.

You can also manage your privacy settings, including cookies, through your browser settings.

Further information about cookies can be found on the Information Commissioner’s Office website.

8. Your duty to inform us of changes

It is important that the personal data the University holds about you is accurate and current. Please keep us informed if the personal data you have provided to us needs to be updated.

9. Your rights as a data subject

Under the GDPR, in certain circumstances, you have the right to:

  • withdraw your consent to our processing of your personal data where that is the legal basis for such processing
  • access any of your personal data which we hold
  • have your personal data which we hold corrected if it is inaccurate
  • have any of your personal data which we hold erased
  • restrict the ways in which we process your personal data
  • object to our processing of your personal data
  • receive a copy of any of your personal data which we hold in a structured and commonly used machine-readable format
  • in certain cases not be subject to a decision based solely on automated decision making
  • lodge a complaint with a supervisory authority.

10. Queries and complaints

If you have any queries or concerns relating to this privacy notice or the way your data is being processed through this website then please contact the University’s Data Protection Officer, Alice Temple.

The UK’s regulator for the Data Protection Legislation is the Information Commissioner’s Office (ICO). The University is registered as a Data Controller with the ICO.

Should you be dissatisfied with our handling of your concerns you have the right to complain to a supervisory authority. In the case of the UK this is the Information Commissioner’s Office.

Last updated: 9th of December 2021